Challenging the Status Quo: Who Thinks About Disabled Women?
In my quest for current articles that exemplified challenging the status quo I came across and article written by Francine Odette, M.S.W., for the DisAbled Women’s Network.* I had to wonder if most people knew that such an organization existed. I certainly did not. But there are virtually hundreds of organizations to support different causes for women.
There has been much exploration of the issues and concerns that face women who have negative self-body images from the viewpoints of those that are obese or have body image distortions even if thin. Little research, however, has been directed to understanding the social and emotional experiences of women who are disabled, including those who have hearing or visual impairments, speech dysfunctions, or mobility issues. Is this merely an innocent oversight of sociologists and psychologists? Do they lump these women’s concerns in with all the other body image psychosis? Or is it their supposition that the disabled are the responsibility of the medical world alone?
Odette begins her article defining the Western culture’s image of a “normal” or socially desirable body. Oftentimes this equates with thinness which equates to health and success. Women whose bodies fall outside the “range of acceptance” are often isolated as in the case of the obese, minorities, those with non-heterosexual orientation, and the disabled. Likewise, the further they view themselves distanced from the standard of beauty, the greater their self-esteem and self-image suffers. Feminist theorists have spent a great deal of time and energy exposing the truth that the dominant Western culture, defined by white, powerful, heterosexual males, has created the model of the perfect image of the female most desired by his gender ‘for the purpose of male pleasure and domination.’ This results in the need to alter “imperfect” bodies, sometimes by significantly altering eating patterns, over-exercising, or by cosmetic medical procedures. The reality for a woman with a disability is that the quest for that perfect body is not just difficult, it is impossible.
The culture of the disabled, often treated as though it didn’t exist, is primarily endorsed by notions of childlike dependency, overtures of bizarre anger episodes and dramatic displays of strength which are exemplified in the media. This serves to alienate women who have disabilities from others who don’t. Furthermore, these women often perceive family, friends, and societal expectations for themselves in the role of a woman as an intimate partner to be a losing effort because of their disabilities.
Odette brings up a very disturbing point, at least from a woman’s perspective, concerning the processes a women with disabilities endures in the name of medical knowledge. Girls and women are often paraded naked in front of panels of complete strangers, mostly male, and are required to bend and twist to determine their range of motion and flexibility. These actions are visually recorded and used for educational purposes with no consideration of what implications it might have on the girls and women who have been filmed. As these females have little control over what happens to their bodies medically, they turn to other control attempts such as bingeing, cutting, or other forms of self-mutilation.
The author concludes her article with suggestions that emphasize the need for women with disabilities to accept how they feel about themselves and to turn to others that can validate the abilities they do possess to affirm self –worth. She urges disabled women to show solidarity and awareness of the needs of all people by making links with others that can contribute to the well-being of all people, to challenge stereotypes and prejudices, to stop discrimination. We hear this same call to action in the speeches of Martin Luther King, Jr. as he addresses the social injustices towards the black community, in Sojourner Truth’s arguments for women’s rights, and in Eleanor Roosevelt’s discourse in front of the United Nation that demands a worldwide consensus and declaration of a common set of human rights that will serve to protect the ‘dignity of the human personality.’ The abandonment of the notions that those with disabilities are any less human, compassionate, intimate, and/or incapable of greatness is long overdue.
* Just for the record, I did not spell the network’s name incorrectly; the network designates the capital ‘A’ on purpose.
www.wifacets.org/yitrc/media/Bodybeautifulbodyperfect.pdf